Toxic narratives around ‘benefit scrounging’, fed by successive governments, have become embedded in the national psyche
As a disabled person, you’re forced to repeatedly explain your medical history – but for this article, I think it’s important. I was born with a very rare type of cancer called a neuroblastoma. In 1965, it was pretty much a death sentence. Luckily, I took part in a clinical trial and, with only days to live, I had major surgery, radiotherapy and chemotherapy with a new drug. Despite being given no more than five years to live, on my last birthday I celebrated hitting 60. I doubt anyone in 1965 would have imagined how attitudes towards disabled people would improve as I grew up. It is devastating to see how those same attitudes have reversed in the past decade or two.
The cancer left me with a paralysed right leg, so I wore a leg brace, but otherwise I was a pretty normal kid. I was lucky to be starting school in 1970 when the Chronically Sick and Disabled Persons Act came into force, which made it possible for disabled children to attend mainstream schools, if they could manage it. My parents moved across Luton to be near the only school that would accept me on a trial run and then as a pupil. When I was a child, if you could manage living like non-disabled people then you were allowed to do so. Not the fully inclusive practice I later campaigned for, but an acknowledgment that disabled people shouldn’t be written off.
Continue reading...